Hello again.
I’m pleased to say that Dom is making good and steady progress in the Getting Well Campaign. Since last I wrote, he has been attending school full time with the exception of our trip to UCH for his first post chemo clinic.
On the Sunday before he went back to school he was all keyed up to get back. The two weeks of half term couldn’t have come at a better time as it gave him a real opportunity to catch up on sleep, friends and planning the near future. It was refreshing to know that at the time we would once have been packing our bags and preparing for the trip to T12N, we could plan for a relaxed evening having stuffed ourselves silly with a big Sunday lunch and flopped down in front of the TV. Hoorah!
The following morning Dom was a bit down about Andre. The subject had come up and he couldn’t shake the feeling of misery all morning. We went into town to be done to by Sue the Phyiz, (she really is a whizz of a phyiz, if ever a whizz there was …. 
), and having put both of us through our paces and rubbed out the knots and stiffness, we left to go our separate ways. Dom went back to school and I went to the office. I sent an email to school to warn his teachers about the news we had received and his mood just in case he was too upset to concentrate.
I’m pleased to say that being back at school and involved with lessons and friends of his turned around how he was feeling and he came home in much better spirits. It was obviously a distraction.
On Wednesday it was tube strike day. Bloody yippee! It meant that Dom and I had to walk from Marylebone We had to get to the hospital and without any sign of a bus that was travelling faster than we were, Shanks’s pony it was. (Did I mention that we don’t have an unadulterated leg between us?). Still we had to do it as we had to go to his first post-chemo clinic appointment with the woman who has taken over from Maria, Dom’s consultant, who is off on maternity leave.
Dom went straight to get his chest x-ray done since some dipstick in x-ray decided he shouldn’t have it last week, and would have missed his appointment but as it turned out everything was running late. When we got there, we saw Bryony briefly before going in who said how well Dom was looking. She had also had a long walk to work.
We eventually saw the consultant. Unfortunately, she didn’t have all the information from the investigations to hand, which included the reports from hearing and echo I had handed in the week before, but she assured us that there was nothing except the original dot in his chest x-ray of any note and since that had been there since the beginning of treatment and had remained unchanged it was not significant. I took comfort from the fact that he would have been reviewed in the MDT (multi-disciplinary team) meeting last Friday where I would hope all of the investigations were considered.
There wasn’t a hope of Dom getting back to school as everything was so late and he had the afternoon off. We went onto the ward for a while to catch up with friends and came home when he was done.
Just snoozing!
The rest of the week was straightforward. Dom was coping well with school but going to bed early every evening. I had another appointment with Sue the Phyiz to work out the knots that continue to build up on my legs which set me up nicely for my 6 month post op appointment with Cath.
Kate and I took a trip up to Cambridge where Mr Villar (all hail!) is now based full time. It was great to see Cath again but she did have some disappointing news of her own. She was very happy with the progress I have made since my last op. I haven’t seen her, except to say a quick hello to, since just before my second injection of the year when she and Dom set me up. She was impressed with how far I had come and had never seen me that strong in the two and a half years I’ve known her. She asked me who my physio was and made a note. She then left it up to me to call them to make another appointment, presumably if I need to and I don’t suppose I do.
Dom was out with Matthew and friends on Saturday night and had a good night. On Sunday he got cracking on his homework. He seems to be enjoying it. Ngawang and I went looking for kitchens to Magnet where he saw a guy he used to work with more than 20 years ago!
That’s about it. See you later for the next exciting episode.
